The Hummingbirds' Foundation for M.E.

This site, www.hfme.org, is our main base of operations and the primary HFME website. This site features all of HFME’s papers and downloads and other features.

This primary site also links to the following other minor sites:

The HFME YouTube channel

A collection of all HFME’s original advocacy videos.

 

The HFME Cafepress store

A store where you can buy shirts, mugs and stickers etc. featuring the HFME logo. Part proceeds from Cafepress sales benefit the work of the HFME.

 

The HFME Amazon.com booklist

A list of recommended books for patients and doctors. If you support the aims of the HFME please give this list a positive rating.

 

The HFME e-newsletter

The HFME e-newsletter is a free plain-text email newsletter sent out monthly. Click here for information on signing up for the newsletter.

 

The HFME Yahoo.com support and chat group for M.E. patients

This is a group (run by Jodi Bassett) where people with the organic neurological, cardiac, immune and neuroendocrine illness Myalgic Encephalomyelitis (classified at G93.3 by the World Health Organisation) can meet other people with the same illness for advice, support and new friendships. M.E. carers are also welcome. This is also a group that cares about challenging the myths about 'CFS' and ME and isn't prepared to accept how things are now; where people with ME are abused/neglected etc. We know that knowledge is power and that debunking these myths is really important. Please read the group's homepage fully before you join, please. This group also contains a penpals section. (Conditions apply to membership of this group.)

 

The HFME Yahoo.com support and chat group for severely affected M.E. patients

This group is run in the same way as the main support group, but is restricted to severely affected patients. Please read the group's homepage fully before you join. (Restrictions and conditions apply to membership of this group.)

 

The HFME Yahoo.com discussion group

This is an unlisted group is for those who want to play a part in the setting up of HFME, and participate in various HFME projects and discussions of projects. Please contact Jodi Bassett for more information. (Conditions apply to membership of this group.)

 

Note that the ‘A Hummingbirds’ Guide’ website is now a personal website for Jodi Bassett.

Note too that much of the information on healing, diet and nutrition that was on HFME is now hosted on the new Health, Healing & Hummingbird website, created by Jodi Bassett.

• M.E. overview
• M.E. onset
• M.E. symptoms
• M.E. outbreaks / cause
• M.E. tests
• M.E. treatments
• M.E. severity  / deaths
• M.E. myths
• M.E. & misdiagnosis
• M.E. terminology / definitions
• M.E. & mistreatment
• M.E. anti-advocacy
• The WHO & M.E.
• M.E. advocacy

Home

Hummingbirds

What is M.E.?

• What is M.E.? Super Summary
• What is M.E.? Summary
• What is M.E.? Extra extended version
  

M.E.: The Medical Facts

• M.E. The medical facts - Super-summary
• M.E. The medical facts - Summary
• M.E. The medical facts - Extended

The M.E. Symptom List

• The M.E. Symptom Summary

The M.E. Ability Scale

Testing for M.E.

• Testing for M.E.: Summary  

Treating M.E.

• Treating M.E.: Avoiding overexertion  
• Avoiding Overexertion in M.E. - Summary
• Treating and living with M.E.

Misdiagnosis

• The misdiagnosis of 'CFS'
• Where to after a 'CFS' (mis)diagnosis?
• Why the disease category of 'CFS' must be abandoned

Case Studies

• A day in the life of severe Myalgic Encephalomyelitis

What M.E. Feels Like

• What M.E. feels like to me

Research topics:  

• General articles and research overviews,
• Cardiac and cardiovascular research, 
• Exercise research,
• Mitochondrial muscle research and general muscle research, 
• Metabolic research, 
• Neurological and cognitive research, 
• Genetic research, 
• Neuroendocrine and endocrine research,
• Immune system research 
• General viral research, enteroviral and post-polio research and
• Miscellaneous research.

Article topics: 

• The definitions of M.E.(and 'CFS'), 
• M.E. is not defined by 'fatigue',
• Research and articles which expose the lack of scientific legitimacy (and the hidden financial and political motivations) underlying the 'behavioural' paradigm of M.E. and the use of CBT and GET on M.E. patients,
• Articles exposing the truth behind scams (often aimed at M.E. patients) such as the Lightning process, Reverse therapy, Mickel therapy and EFT etc., 
• On the supposed role of 'stress' in the causation of M.E., 
• The outbreaks (and infectious nature) of M.E., 
• On the name Myalgic Encephalomyelitis,
• M.E. and other illnesses,
• Children with M.E., 
• Anaesthesia and M.E.,
• The severity of M.E., 
• M.E. fatalities,
• Activism articles,
• Articles sorted by author, 
• Articles sorted by country
• Information in audio or video format and
• Historical, political and medical overviews 

Highly recommended authors:

• Dr. Elizabeth Dowsett,  
• Dr Byron Hyde, 

More authors:

• The late Dr Melvin Ramsay,   
• The late Dr John Richardson,
• Professor Malcolm Hooper,
• Dr Chia,
• Dr. Paul Cheney, 
• Dr Lerner, 
• Gurli Bagnall,  
• Lesley Ben, 
• Criona Wilson (mother of Sophia Mirza), 
• Margaret Williams and Eileen Marshall, 
• LK Woodruff,
• Lajla Mark,
• Cesar Quintero Dr John H Greensmith and John Sayer, 
• Hillary Johnson, Peggy Munsen and the Countess of Mar, 
• Dr David Bell,  
• John Anderson, Kevin Short, Steven Du Pre and Lois Ventura

Highly recommended M.E. groups:

• The Committee for Justice and Recognition of M.E.,  
• The Nightingale Research Foundation,

• The Hummingbirds' Foundation for M.E. (HFME)

A Million Stories Untold  and So you know someone with M.E.? 

Hospital or carer notes for M.E. 

Why patients with severe M.E. are housebound and bedbound

Group comments

• Group comments on being told 'you look well' and on getting nasty comments related to M.E.
• Group comments on the 'Lightning Process' scam and other related scams aimed at M.E. patients
• Group comments on the importance of avoiding overexertion in M.E .
• Group comments on Oprah possibly doing a show on M.E.

Comments on the 'Lightning Process' (etc.) scam

Are we just 'marking time?'  

Canadian Guidelines Review

M.E. advocacy and 'CFS' advocacy are not the same

My comments about the current (worrying) state of Australian ME societies

Myalgic Encephalomyelitis vs Fibromyalgia  

My comments on the CDC's latest 'CFS' press release